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The Limbo Admission
Surgery has a shape. You can prepare for before and after. But the monitoring admission? No shape. Just hours, stacked on top of each other, in a room that smells of hand sanitiser, trying to read your child's face for clues the machines aren't picking up. We came home with no diagnosis. Here's why that still felt like a win.
Jul 113 min read


How Not to Lose Your First Tooth
Elias lost his first tooth after a birthday balloon accident, emergency dentists and one very panicked mum trying to hold it together.
May 93 min read


Q1 Review: Is Your Child Still Operational? A Quarterly Business Review
The quarterly business review season of parenting a child with additional needs. Audiologist. Physio. Paediatrician. All at once. Obviously.
May 13 min read


The Birthday I Spent in ICU, and the Nurses Who Made It Bearable
My 1st birthday as a parent was spent in ICU with Elias. A cake and a group of nurses reminded me that hospital staff hold families together
Feb 13 min read


Why Speaking Up About Disability and Diagnosis Matters
An unexpected diagnosis can change everything. Why voices like Jesy Nelson’s matter and why no parent should face this alone.
Jan 42 min read


Ruling Out the Worst
When your child is non-verbal, you must rule out the worst before you can focus on the small. This is the reality of complex needs.
Dec 7, 20253 min read


The Guilt of Letting Things Slip - Glasses edition
Parent carer guilt is brutal. One missed appointment feels like failure, even when you’ve fought endlessly to be heard.
Sep 26, 20253 min read


Pampers’ Size 9 Nappies: A Game-Changer for SEND Families, Not a Headline for Outrage
Pampers’ Size 9 nappies are a win for SEND families, yet headlines focus on the wrong issues. This is about dignity, not controversy
Mar 31, 20252 min read


Managing a Hospital Admission
Dealing with a hospital stay can drive us all crazy, but coping is essential.
Sep 5, 20243 min read


Finding Strength: Navigating Difficult News as a Parent of a Child with Complex Needs
Navigating tough news about your child’s health? Find hope, balance, and strength in our journey.
Jun 30, 20243 min read


The Good Cop/Bad Cop Dynamic: Advocating for Our Child's Complex Needs
Advocating for our child's complex needs requires a balance of empathy & assertiveness. Discover how we navigate the good cop/bad cop
May 11, 20242 min read


Navigating the NHS: Advocating for Your Child's Needs
Advocate for your child’s healthcare by being clear, asking questions, and seeking second opinions. Your voice matters!
Apr 27, 20242 min read
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